https://www.dmdparentsgeorgia.com/news/ Curated Georgian and international media monitoring about Duchenne muscular dystrophy, treatment access and parent advocacy in Georgia. en Sun, 19 Apr 2026 18:30:00 +0400 DMD Parents Georgia https://jam-news.net/tbilisi-march-for-children-with-duchenne-dystrophy/ dmdparentsgeorgia:jamnews-2026-04-19-thousands-joined Sun, 19 Apr 2026 12:00:00 +0400 JAMnews says the April 18 Saturday march in Tbilisi was dedicated to children with Duchenne muscular dystrophy, that thousands of people joined the families’ demand for state budget funding for very expensive medicines, and that around 100 children are registered with the diagnosis in Georgia. https://dfwatch.net/opposition-blames-gd-for-failures-in-rare-genetic-disease-66320/ dmdparentsgeorgia:dfwatch-2026-04-18-continuous-round Sat, 18 Apr 2026 12:00:00 +0400 DFWatch reported that protesters in central Tbilisi demanded access to medicine for children with Duchenne and said a new round of continuous demonstrations would begin outside the Government Administration starting April 20. https://www.interpressnews.ge/en/article/146985-mikheil-sarjveladze-on-duchenne-syndromesilence-these-days-does-not-mean-less-empathy-we-are-deeply-saddened-for-these-children-we-will-do-everything-possible-and-will-also-explain-what-we-are-planning-and-what-has-already-been-done/ dmdparentsgeorgia:interpress-2026-04-18-minister-response Sat, 18 Apr 2026 12:00:00 +0400 Later on April 18, Health Minister Mikheil Sarjveladze said he understood the emotions of the families, promised that the ministry would do everything possible, and said additional communication would follow on the Duchenne treatment issue. https://www.radiotavisupleba.ge/a/33735237.html dmdparentsgeorgia:rferl-2026-04-18-continuous-protests Sat, 18 Apr 2026 12:00:00 +0400 Radio Liberty wrote that after the April 18 march, parents of children with Duchenne announced uninterrupted protest actions from Monday, April 20, near the Government Administration. They said they had not been allowed to place tents and would remain there even without tents. https://netgazeti.ge/news/804605/ dmdparentsgeorgia:netgazeti-2026-04-18-beka-shonia Sat, 18 Apr 2026 12:00:00 +0400 Netgazeti highlighted the voice of 21-year-old Beka Shonia, who says he is already too old to qualify for the medicine himself and asks society and the state to help younger Duchenne patients receive treatment on time. https://tvpirveli.ge/ka/siaxleebi/sazogadoeba/125841-diushenis-kuntovani-distropiis-mqone-bavshvis-deda-ministrma-gvitkhra-tqven dmdparentsgeorgia:tvpirveli-2026-04-18-mother-quote Sat, 18 Apr 2026 12:00:00 +0400 At the April 18 march, TV Pirveli quoted the mother of a nine-year-old boy who said families had failed to make the ministry understand how costly every lost day is. The report also said parents planned to begin a continuous protest outside the Government Administration from April 20. https://publika.ge/sakhalkho-damcveli-diushenit-daavadebuli-bavshvebis-mshoblebis-mimartvas-ekhmaureba/ dmdparentsgeorgia:publika-2026-04-17-ombudsman Fri, 17 Apr 2026 12:00:00 +0400 Publika reports that the Public Defender’s office is reviewing the Duchenne medicine issue based on an April 8 appeal. The office says it is looking at both children’s right to health and freedom of expression and will use all available mechanisms to support access to essential medicine. https://www.radiotavisupleba.ge/a/%E1%83%93%E1%83%98%E1%83%A3%E1%83%A8%E1%83%94%E1%83%9C%E1%83%98%E1%83%A1-%E1%83%A1%E1%83%98%E1%83%9C%E1%83%93%E1%83%A0%E1%83%9D%E1%83%9B%E1%83%98%E1%83%A1-%E1%83%9B%E1%83%A5%E1%83%9D%E1%83%9C%E1%83%94-%E1%83%91%E1%83%90%E1%83%95%E1%83%A8%E1%83%95%E1%83%94%E1%83%91%E1%83%98%E1%83%A1-%E1%83%9B%E1%83%A8%E1%83%9D%E1%83%91%E1%83%9A%E1%83%94%E1%83%91%E1%83%98-%E1%83%90%E1%83%A5%E1%83%AA%E1%83%98%E1%83%94%E1%83%91%E1%83%A1-%E1%83%92%E1%83%94%E1%83%92%E1%83%9B%E1%83%90%E1%83%95%E1%83%94%E1%83%9C/33733101.html dmdparentsgeorgia:rferl-2026-04-15-blocked-at-government Wed, 15 Apr 2026 12:00:00 +0400 Radio Liberty said police blocked families outside the Government Administration on April 15 and allowed only three parents to enter and file a statement. Parents wanted a direct answer from the prime minister about life-saving medicine, and the report captures how sharply the issue is felt after recent deaths. https://georgiatoday.ge/parents-appeal-to-government-patriarchate-over-duchenne-treatment-access/ dmdparentsgeorgia:georgiatoday-2026-04-08-risk-and-cost Wed, 08 Apr 2026 12:00:00 +0400 Georgia Today wrote that the Ministry of Health said it was refusing to import the medicines because of safety concerns and ongoing long-term studies, while parents replied that the same treatments are already used in the US and Europe and suggested that cost is a major reason for the resistance. https://bm.ge/news/irakli-kobakhidzestan-shekhvedras-kidev-ertkhel-movitkhovt-diushenit-daavadebuli-bavshvebis-mshoblebi-morig-aqtsias-gamartaven dmdparentsgeorgia:bm-2026-04-06-restrictions-and-meeting Mon, 06 Apr 2026 12:00:00 +0400 BM.ge reported that parents gathered again on April 6 outside the Government Administration, demanded a meeting with Prime Minister Irakli Kobakhidze, said they were barred from placing tents and continuing a 24-hour protest, and repeated their request for imported medicines and funded examinations. https://civil.ge/archives/727974 dmdparentsgeorgia:civil-2026-03-30-treatments-care-team Mon, 30 Mar 2026 12:00:00 +0400 Civil.ge wrote that families continue to demand free access to modern treatments already approved internationally and a permanent multidisciplinary team for Duchenne care. In late March, they warned they could move to continuous street protests and even tents if talks failed.