Apr 19, 2026
JAMnews
Original language: en
JAMnews: thousands joined the Tbilisi march for children with Duchenne
JAMnews says the April 18 Saturday march in Tbilisi was dedicated to children with Duchenne muscular dystrophy, that thousands of people joined the families’ demand for state budget funding for very expensive medicines, and that around 100 children are registered with the diagnosis in Georgia.
Tags
international coveragethousands joinedbudget funding
Apr 18, 2026
DFWatch
Original language: en
DFWatch: the march signaled a new round of continuous demonstrations from April 20
DFWatch reported that protesters in central Tbilisi demanded access to medicine for children with Duchenne and said a new round of continuous demonstrations would begin outside the Government Administration starting April 20.
Tags
international coverageApril 20continuous protest
Apr 18, 2026
Interpressnews
Original language: en
Health minister responds after the march and promises further explanation
Later on April 18, Health Minister Mikheil Sarjveladze said he understood the emotions of the families, promised that the ministry would do everything possible, and said additional communication would follow on the Duchenne treatment issue.
Tags
ministry responsehealth policyApril 18
Apr 18, 2026
Radio Liberty / RFE/RL
Original language: ka
Radio Liberty: parents announce uninterrupted protest near Government Administration from April 20
Radio Liberty wrote that after the April 18 march, parents of children with Duchenne announced uninterrupted protest actions from Monday, April 20, near the Government Administration. They said they had not been allowed to place tents and would remain there even without tents.
Tags
continuous protesttentsApril 20
Apr 18, 2026
Netgazeti
Original language: ka
Netgazeti publishes the appeal of 21-year-old Beka Shonia to help younger Duchenne patients in time
Netgazeti highlighted the voice of 21-year-old Beka Shonia, who says he is already too old to qualify for the medicine himself and asks society and the state to help younger Duchenne patients receive treatment on time.
Tags
patient voiceBeka Shoniaurgency
Apr 18, 2026
TV Pirveli
Original language: ka
TV Pirveli quotes a mother who says every lost day sets children back
At the April 18 march, TV Pirveli quoted the mother of a nine-year-old boy who said families had failed to make the ministry understand how costly every lost day is. The report also said parents planned to begin a continuous protest outside the Government Administration from April 20.
Tags
TV coveragemother quoteApril 20
Apr 17, 2026
Publika
Original language: ka
Public Defender says the case is being studied as a matter of children's life and health
Publika reports that the Public Defender’s office is reviewing the Duchenne medicine issue based on an April 8 appeal. The office says it is looking at both children’s right to health and freedom of expression and will use all available mechanisms to support access to essential medicine.
Tags
ombudsmanrightshealth policy
Apr 15, 2026
Radio Liberty / RFE/RL
Original language: ka
Radio Liberty: parents say they were blocked outside Government Administration
Radio Liberty said police blocked families outside the Government Administration on April 15 and allowed only three parents to enter and file a statement. Parents wanted a direct answer from the prime minister about life-saving medicine, and the report captures how sharply the issue is felt after recent deaths.
Tags
government administrationblocked entryurgency
Apr 8, 2026
Georgia Today
Original language: en
Georgia Today: ministry cites safety concerns, parents say the medicines are already used abroad
Georgia Today wrote that the Ministry of Health said it was refusing to import the medicines because of safety concerns and ongoing long-term studies, while parents replied that the same treatments are already used in the US and Europe and suggested that cost is a major reason for the resistance.
Tags
safety debatecostinternational use
Apr 6, 2026
BM.ge
Original language: ka
BM.ge: parents renew their demand for a prime minister meeting and say tents were not allowed
BM.ge reported that parents gathered again on April 6 outside the Government Administration, demanded a meeting with Prime Minister Irakli Kobakhidze, said they were barred from placing tents and continuing a 24-hour protest, and repeated their request for imported medicines and funded examinations.
Tags
meeting demandtentsfunded examinations
Mar 30, 2026
Civil.ge
Original language: en
Families demand internationally approved treatments and a multidisciplinary care team
Civil.ge wrote that families continue to demand free access to modern treatments already approved internationally and a permanent multidisciplinary team for Duchenne care. In late March, they warned they could move to continuous street protests and even tents if talks failed.
Tags
care teamapproved treatmentsMarch 30